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Ketoge-what?
When Abby first got her diagnosis, it wasn’t supposed to be a big deal. Her seizures would be simple to treat and she would outgrow them in a few years and voila! But something didn’t feel right, so...
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Whole Family Support
We haven’t fully moved Abby’s epilepsy care to CHOP, but we are 90% of the way there, and the thing that has convinced us that we are doing the right thing is that they have an approach that treats the...
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Waiting to Exhale
I was on my way to the bank when I received a message from my son’s school: [Redacted] School has been evacuated. All students & staff are safe. Now awaiting the all clear to return to the...
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Frantic
So this morning, when I that my van keys were missing (they are still missing); I was frantic. The kids were already on their way out the door and I didn’t have time for such shenanigans. I ran around...
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It Could Always Be Worse…. Right?
CHOP KETO ADMISSION: DAY ONE Today was admission day for Abby to start the Ketogenic diet. The best I can say about today is…. at least we have set the bar low for tomorrow… after today, even the...
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KetoKid
Yesterday marked an important milestone: Abby’s body officially begun the transition into ketosis – her morning blood ketone levels were over 2.4. The team here looks for anything over 1.5, so...
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The WaWa Family
Abby’s diet consists of 90% fat. Fifty percent of the fat she consumes is in the form of heavy cream. Specifically, the heavy cream she consumes is special 6g of fat per serving cream. Most heavy...
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The Waffle Saga
If you never thought that waffles could be a saga, think again. On the ketogenic diet, regular kid dietary staples are a thing of the past. That means pancakes, waffles, grilled cheese, french toast,...
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Paranoia
Have I told you about how on Saturday Abby snuck 3 donuts, her ketones plummeted and she had five seizures? And how she spent the entire day screaming at me about how mean I am to her and how I don’t...
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Two Steps Forward, One Back
Abby had a great keto followup at CHOP yesterday. I’ve shared with a few people privately, but have hesitated to say out loud, that she’s had some really outstanding and remarkable success with the...
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